Health Data Utilities: the Path to Effective Public Health Partnerships

Room 1 (Salon H,I,J,K,L)
The Health Data Utility (HDU) concept and model is evolving. Increasingly, Civitas members are recognizing their critical role in combining, enhancing, and exchanging health data. Such members as CyncHealth have been functioning as an HDU for multiple years, using state policy levers, engaging broad stakeholder groups in participation and community engagement, maturing use cases with Medicaid and public health, creating equitable governance and committing to transparency all while maintaining high standards for data privacy and security. Jaime Bland, President and CEO will share insights about the HDU model and how this is serving the state of Nebraska. She also will moderate a discussion among three other Civitas members who are newer to HDU adoption and application. She also will moderate a discussion among three other Civitas members that represent different models of HDU adoption and application.

The statewide HIEs in Maine, Rhode Island and Vermont are each on the trajectory of operating as a Health Data Utility (HDU) for their respective states, having followed different paths with differing successes, challenges, opportunities and lessons learned along the way. The leaders of HealthInfoNet in Maine, Rhode Island Quality Institute (RIQI), and Vermont Information Technology Leaders (VITL) - operators of their states’ HIEs - will share the experiences of their organizations on the path to partnering with their state governments, engaging multi-stakeholder groups in strategic planning and governance activities, developing broad-reaching connectivity and interoperability, delivering on statewide public health needs, advancing capabilities in support of Medicaid value-based purchasing programs and working toward models of sustainability.

Each HIE will share how operating as an HDU further supports their work to advance health equity in their respective states. Early successes among the HIEs include: providing data for use in evaluating disparities in health outcomes associated with race and ethnicity in order to effectively target improvement efforts; working to more accurately, sensitively, and consistently capture social care information such as social determinants of health and sexual orientation and gender identity information from provider participants; wellness and wellbeing; and provisioning essential data to support care delivery by providers who serve the state's most vulnerable individuals. Throughout these activities, each HIE is partnering closely with their states’ public health authorities, Medicaid agencies and other critical stakeholders in strategically planning the role that they – and their HIE data sources – may play in helping to advance health equity.